Archives for the month of: August, 2012

Where the heck is the e-doctor? I’m slogging away trying to be an e-patient, among other things, but where is the doc who will meet me half way?

If you’ve been following spontaneous coronary artery dissection (SCAD) research developments, you know that fibromuscular dysplasia (FMD) is a recently confirmed associated condition. Perhaps even a cause. Time will tell.

Well, let’s just say I have kids. And one of them dissected an intestine after a routine GERD workup when he was five, and spent three weeks in the hospital and a year transitioning back to solid foods. Then, let’s pretend that he had excruciating “abdominal migraines” for two years and began classic migraines at age seven. As his mom, with a history of SCAD and a healed carotid dissection from suspected FMD, I’d probably be doing my job to get said child evaluated. Right? I’ll take that as a yes.

So guess what his MRI/MRA order read? Go on. You will never get it.

It said, “family history, headache with cough.” And this is at Children’s National Medical Center…in our nation’s capitol. No mention of artery dissection. No mention of FMD. Nothing.

How can things get so flippin’ discombobulated? How can I trust that the report I received is accurate? Especially since the mom in charge (me) was so hysterical that she took her child to a neurologist for “severe headache, increasing with cough.”

The report says he’s fine. I wish I could believe it.

A child of the 1960’s takes a look back to appreciate the communication tools of today.

A Spoonful of Technology …

(With thanks to Mom, for grinding up all those pills, and heartfelt good wishes to my new West coast friend!)